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COVID-19: Understanding the Post-Viral Phase Study

Why was I contacted about this study?
You were contacted because your doctor's office was required to keep the information on all people who had a COVID test. No information about your health or your name, address or other personal information will be shared with the study team without your approval, agreement and consent.

What is the COVID UPP?
COVID UPP stands for COVID-19: Understanding the Post-Viral Stage. It is a research study funded by the Center for Disease Control and conducted in partnership with Nova Southeastern University, Institute for Neuro-Immune Medicine.

What is the purpose of COVID UPP?
The purpose of this study is to provide information about the experience of people who continue to have fatigue and other symptoms following a COVID-19 positive test. The study will help researchers and clinicians to understand if the illness improves or worsens over time and how similar and different long-term illness due to COVID is from other illnesses, including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The results will help researchers and clinicians to understand what factors and treatments may be more or less likely to help resolve symptoms of COVID-19 over time.

What do I do if I join the study?
The research team will invite approximately 2000 individuals who continue to have fatigue and other symptoms three after a positive COVID test and 200 who fully recovered from COVID-19 to participate in the study. Participants will be asked to complete online surveys about their health every three months for three years. About 200 participants will be invited to complete a physical exam and medical tests to describe their health in more detail.

• Having a positive COVID test 3 months ago
• 18-65 years old
• Any pre-existing illness (like diabetes or hypertension) to be well-controlled and not explaining the symptoms felt to result from having COVID-19
• For people who feel they have fully recovered, they should not have fatigue with exertion intolerance
• • For people with long COVID, they should have fatigue and at least one more symptom

Who will get the big clinical evaluation?
Based on an results from an online survey, 150 – 200 people with Long COVID that is considered moderately to severely ill with fatigue and exertion related relapse. Additionally, 50 people who are fully recovered, for our healthy control group.

How do I unsubscribe from getting another inquiry to join this study?
We are being careful that we do not ask people twice to participate. If you receive any further requests to join the study, please contact the study team at 305-275-5450.

I don’t want to be in the study – can you take me off your list?
We will not contact you or follow-up with you unless you give us permission to do so. If you receive any further messages from us, please contact us at 305-275-5450.

What happens if I do not fill out the survey?
Nothing – It is your choice to participate or not. We will not contact you or follow-up with you unless you give us permission to do so.

Can I get a COVID-19 vaccine from Nova Southeastern?
Please contact your medical provider or the Florida Department of Health in your county for vaccine information and locations.

I still require medical care related to COVID-19. Can I set up an appointment with Nova Southeastern?
Yes, please call 954-262-2850 for more information.